ACOR was established by the
CSANZ, to build national registries of cardiac patient outcomes for Australia and New Zealand.
See also National TAVI Registry .
Why should I participate in ACOR?
ACOR's main purpose is to improve clinical practice and cardiac patient outcomes in Australia and New Zealand and will do so by collecting and analysing outcomes data from each site nationally and internationally.
ACOR is committed to high-quality data collection and will never charge you to access your own data.
ACOR also provides:
- a simple method for quality assurance
- data analysis resulting in quarterly reports on your site's data and a comparative nationally and internationally
- annual reports on data collected
- audit capabilities (all sites will eventually be audited after the registry meets critical mass)
- opportunities for all participants to contribute to publications of Australian and New Zealand data, through a Research and Publications committee
- access to help desk staff Monday to Friday.
What information do we collect?
ACOR currently comprises of the Cardiac Procedures Registry (CPR) and the Cardiac Devices Registry (CDR).
The CPR consists of a Percutaneous Coronary Intervention (PCI) module and an Electrophysiology (EP) & Pacing module. Data collection includes basic patient demographics, medical history, cardiac risk factors, procedural information (pre, peri and post), complications, discharge information and a 30 day and 12 month follow up.
The CDR utilises basic data collection with an aim to monitor the safety of high risk implantable devices. Data collection includes basic patient identifiers, device information including implant, explant and safety events and a 4‐6 week follow up.
Identifying information is necessary to accurately link a single patient with multiple records and to allow the potential for future data linkage to other information sources such as pathology records, PBS, MBS and the Births, Deaths and Marriages Registry.
No ACOR report will ever contain identifying patient information.
Does it cost to participate in ACOR?
Participation in the Cardiac Procedures Registry for a site is fee-free for the first 12 months. Should any fees be incurred after the first 12 months this will be determined in consultation with participants. Participation in the TAVI Registry requires hospitals to pay a registration fee.
What are the methods of data collection?
ACOR is committed to capturing your data with as little impact on workload as possible. Data submission can occur via three methods, or any combination of the three:
- Paper data collection forms. Also utilised as a contingency should methods for electronic data provision be unavailable.
- Online data entry directly into the ACOR web-based system.
- Data upload from pre-existing data collection systems. ACOR can utilise data collected by databases already in use by a clinician or department.
All data will be cleaned by the registry operator to ensure that data is of a high standard and any queries that may arise will be fed back to the site for rectification. Once the registry has reached critical mass the registry audit process will commence, with all participating sites being audited over time. Auditing registry data will also ensure quality data and expose any information that may have been purposely selected to enhance site performance.
What if I have feedback or an idea for improvement of the registry?
The ACOR registry is always evolving! Should you have any suggestions or comments, whether it be in regards to the parameters currently being collected, definitions being used, format of reports or quality metrics being accessed ACOR is happy to hear from you.
ACOR is also committed to identifying and bridging gaps in cardiac health care and is more than willing to hear of any up and coming areas of developing therapeutic procedures that may benefit from monitoring and assessment at a national level.
How do I get involved with ACOR?
Should you or your site want to participate in ACOR and have not yet been contacted by the ACOR team, please contact us.
Next steps for getting on board include scoping any local governance that is in place for your relevant site and providing support with associated governance submission, assessing any preexisting database that may be utilised for data upload, and having the appropriate representation for your site sign a Client Services Agreement (CSA). The CSA is a contract between the participating site and ACOR and discusses further the obligations of both parties in contributing to the national database. Once all approvals are in place staff training will occur and then you are ready to go for data entry!